The Wedding is Here!

I am so excited because tomorrow is Robbye and Melissa's wedding! It will be at St. Patrick's cathedral in New Orleans with the reception at the Hampton Inn near the Convention Center. Most of the family will be there, which is what excites me the most. I have been missing Zach and Matthew so much, and they will be flying in from Houston today. We all have rooms at the hotel for tonight and tomorrow night. I also get to see Angela's baby for the first time. I just know the entire weekend will be a great time, so I don't even care if I am not feeling well. We will be making memories together. I still need to finish packing so I will blog about the weekend later.

Doctor Again

30 more days of prednisone starting at 60 mg! I will look like a snowman for Christmas. I may be able to play Sanat Claus. I refuse to start prednisone until after the wedding this weekend.

Better at times

News Flash - I felt good November 1-3. Okay November 4-5 and then sick again November 7. Rollercoaster of health!

30 Days!

So yesterday I went to Houma for a visit with my pulmonologist and an infusion at the hospital. It seems that many xoliar patients that have been doing well over the past year are suddenly having trouble since the hurricane boys Ike and Gustav visited. My doctor seems to feel that November may be just as bad as October has been - yea :( and basically said I need to "Stay home or leave town!" He wanted to give me an excuse to be off work for 30 days, but I have several things coming up that I need to get done and it would only mean I would have way too much to do in December. We also have Robbye's wedding November 15 in New Orleans. I told him that we are going to Florida for Thanksgiving week, so I just need to get through the next three weeks at work. He wrote a light duty excuse until December 1. So now I just have to follow the rules such as no stairs, stay inside, eat right, drink water, take my meds (he added some and switched when I take some), take breathing treatments, no heavy lifting (which is a part of my job believe it or not), rest often (I am good at that), and be a good little asthmatic until things get better! Typically December is not a bad month for me, so here's to the next 30 days of getting closer each day to being back to normal (or what is normal to me at least!)

Need answer soon

Yesterday my granddaughter turned six years old. I can hardly believe it has been six years. She is truly a joy and a gift in my life. I have tried so hard to be a great grandmother to her. The past few months my asthma has made it difficult to do anything - for Sara, for my husband, for my family, for my job, for myself. I honestly am at a loss as to what to do. I don't know if the two recent hurricanes are the cause. I don't know if the insurance mess up that caused me to not get my monthly infusions for a few months has meant that the infusions need more time to work again. I am going to see my pulmonologist next week. I hope he has some answers. All I know is that I am fighting for every single second. I want to be able to do so much, but I do not have the energy. My mind plans things, but then my body cannot follow through. I just don't know how long things will be like this. I really don't want to have to stay home all the time and take a medical leave or sabbatical. I just know that I cannot continue this way. I feel guilty when I cannot get to a school to help a teacher. I feel guilty when I can't spend more time with Sara. I feel guilty that I am so tired that I just want to go home instead of doing something for my family or visiting them more. I feel guilty that my husband has to do everything. I feel that I could burst into tears all the time, but the reason I don't is because it makes my asthma worse. I have tried everything - medicines, breathing treatments, air cleaners, etc. We are waiting now for them to come install an expensive air conditioner that is supposed to get rid of allergens in the air. Who knows if it will work? I probably should live somewhere other than Louisiana, but I love my state. I could never leave my mom and granddaughter Sara. I want to be healthy. I am 47 years old and feel like I am so much older. I guess this is a pity blog. I just hope that I get some answers soon.